Now, as WCSN, we plan to extend the scope and reach of this program to additional disease areas to provide fundamental support to those suffering from other sleep-wake disorders. Stay tuned for updates!

AWAKE Peer Mentor Program

The AWAKE Peer Mentor Program for sleep apnea provides virtual, one-on-one support for PAP use, connecting new or struggling PAP users with experienced mentors to help them overcome hurdles they are facing.–

The program aligns with PCORI’s six foundational expectations for research partnerships:

• Diverse representation
• Early and ongoing engagement
• Fair compensation
• Capacity building
• Shared decision-making
• Continuous evaluation

This program is important to WSCN because it creates a bridge between lived experience, research, and meaningful outcomes that impact lives.

Many newly prescribed sleep apnea patients struggle with their new treatment for several reasons, including:

• Discomfort: Wearing a CPAP mask can be uncomfortable, especially at first. The mask may cause irritation, pressure sores, or discomfort, making it hard for patients to use it consistently.
• Adjustment Period: It takes time to get used to sleeping with a CPAP machine. The sensation of the air pressure, the noise of the machine, and the presence of the mask can all disrupt sleep initially.
• Mask Fit Issues: Finding the right mask that fits well and is comfortable can be challenging. Poorly fitting masks or the wrong type of mask can lead to air leaks, discomfort, and reduced effectiveness, making patients less likely to use them.
• Side Effects: Some patients experience side effects such as dry mouth, nasal congestion, or sinus issues, which can make using the CPAP machine unpleasant.
• Lack of Understanding: Patients may not fully understand the importance of using the CPAP machine regularly or may not be adequately informed about how to use it correctly.
• Psychological Factors: Some patients may feel claustrophobic or anxious when using the mask, leading to avoidance of the treatment.
• Lifestyle Incompatibility: Incorporating the CPAP machine into nightly routines can be difficult, especially for those with irregular sleep patterns or who frequently travel.
• Perceived Lack of Improvement: If patients do not notice immediate improvements in their symptoms, they may become discouraged and stop using the machine.
• Inadequate Support: Without proper support and follow-up from doctors, patients may struggle to overcome initial difficulties and lose motivation.

Addressing these issues through better education and support helps newly prescribed sleep apnea patients continue the use of their CPAP machine.